Adult Congenital Heart Disease • Cincinnati
Cincy ACHD is a home for patients, families, clinicians, and advocates who believe lifelong congenital heart care should be informed, connected, and compassionate.
About
Adult congenital heart disease, or ACHD, refers to heart conditions present from birth that continue to need specialized attention in adulthood. Many people with congenital heart disease had surgery or procedures as children, but ongoing follow-up remains important throughout life.
This site is being built as a Cincinnati-focused resource for education, community, events, publications, and personal stories.
Our community
We are creating a welcoming place to share updates, highlight the people behind the work, and make it easier for adults with congenital heart disease in the Cincinnati region to find reliable information and support.
Bios
Add short bios for clinicians, coordinators, patient advocates, researchers, and community partners.
Role or affiliation
Short bio placeholder. Add a few sentences about clinical interests, community work, or connection to ACHD.
Role or affiliation
Short bio placeholder. Add a few sentences about patient care, education, advocacy, research, or lived experience.
Role or affiliation
Short bio placeholder. Add a few sentences about what this person brings to the Cincy ACHD community.
Stories
Read stories of hope and inspiration from patients and families cared for by the Cincinnati Children’s Adult Congenital Heart Disease Program.
Stories include experiences with pregnancy, hypoplastic left heart syndrome, ventricular septal defect, transition to adult care, Fontan circulation, and more.
Read patient stories →We hope to add additional Cincy ACHD community stories here over time. Contact us to suggest a patient, family, clinician, or community spotlight.
Suggest a story →Publications
Use these links to search PubMed and Google Scholar for publications from the Cincy ACHD team. Common names are filtered with Cincinnati Children’s affiliation terms and middle initials where possible to reduce unrelated results.
ACHD, outcomes, Fontan circulation, epidemiology, pregnancy, and care delivery.
ACHD and congenital cardiology research. Search uses full name and initials to reduce unrelated results.
Filtered for Cincinnati Children’s affiliation to reduce false matches.
Filtered for Cincinnati Children’s affiliation to reduce false matches.
Filtered for Cincinnati Children’s affiliation and middle initial to reduce false matches.
Filtered for Cincinnati Children’s affiliation and middle initial to reduce false matches.
Upcoming events
Use this section for patient education nights, social events, conferences, support groups, and local ACHD meetups.
June 3–6, 2026 • Hyatt Regency Cincinnati • Cincinnati, Ohio
This international ACHD symposium returns to Cincinnati with didactic and collaborative sessions for trainees, physicians, advanced practice providers, nurses, physician assistants, and other professionals caring for adults with congenital heart disease.
Key topics: heart failure, mechanical support and transplant; reproductive health and pregnancy; international perspectives; electrophysiology; multicenter research; psychology and neurodevelopment; exercise testing and rehabilitation; cardiac surgery; and transcatheter therapeutics.
Contact
Want to add a bio, share a story, suggest an event, or contribute a publication?
Email: ACHD@cchmc.org
For appointments or urgent clinical questions, please use the official Cincinnati Children’s care pathways rather than this general website contact.